Family needs Help

Family needs help in order for daughter to be placed on a lung transplant list!

I have 2 children with Cystic Fibrosis (CF). My son lost his battle to CF December 2,2012 he was 25 years old. My daughter is 24 and has just been evaluated for a double lung transplant. Before she is able to be placed on the transplant list she has to comply with all her medications. One of the medications is Pulmozyme. Insurance will only pay for once a day use and Doctors want her to take it twice a day. A box of Pulmozyme is $3000 for a months supply. I have set up an on line donation site https://www.youcaring.com/medical-fundraiser/help-michelle-fight-cystic-fibrosis/54235 anything will help us get to our goal and help my daughter with her medication and help save her life. Our other problem is getting my daughter back and forth from North Port to Gainesville. I have a 2003 Ford Exployor that will not make these trips as it needs alot of work. I am asking the community for any help they can give my family.

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Lucena Winberg April 24, 2013 at 05:31 PM
Dear Denise Durasky and Michelle, I am so sorry about the loss of your son and brother to Cystic Fibrosis. It is wonderful that a lung transplant is possible to cure this terrible disease. I am so happy to have the opportunity to help with the uninsured cost of the medication. Good luck Michelle.
Denise Durasky April 24, 2013 at 05:47 PM
Thank you very much for your donation. Every bit helps right now for me to be able to get her this medication. Please share this so we can reach our goal. Again thank you and god bless
Jason Bartolone May 15, 2013 at 11:58 PM
Denise reports that her family is still in need. "My daughter has a week of breathing medication left and without it she will get very sick. I desperately need help," she said in an email to Patch Tuesday night.


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